Saturday, January 5, 2013

Look into MS 2012-2013






Happy New Year

I dont know about you, but 2012 went like a flash.  I hope you all enjoyed the holidays and celebrated with your family and friends.  I have a lot to be thankful for that MS has brought me.... Heather are you nuts.... you are thankful for your MS...why would you be thankful?

I am not thankful for the disease itself, but it has brought me blessings i would not have had if it werent for this disease...


I am thankful for my amazing MS sistas Elyse and Jen... they make this journey so much easier for us all.  They are the most amazing people. 

I am thankful for ALL the amazing people in the MS community that I have had the honor to meet either in person, or in our support groups.

I am thankful for all of the SecureACure4MS followers, blog readers, blogtalk radio listeners, twitter followers and those in our Facebook group.

I am thankful for all the amazing friends and people that joined my life.  Everyone has made a difference for me.

Most of all, I am thankful for my best friend who has become my sister. 2 and half years ago we were just 2 people on facebook that had MS in common. Today we are the BEST of friends and we look at each other as sisters. MS does have its blessings..Sharon is proof of that. Together we had an amazing year with our not-for-profit SecureACure4MS (which would not have been formed if we had not been put in each other's lives)


2012
 
In 2012 the MS Community had a new Oral therapy hit the market. 

Aubagio

More research into Stem Cell's was made

Can a Simple eye scan reveal extent of Multiple Sclerosis?

Researchers Identify New Factor That Plays Role in Multiple Sclerosis

More states legalized the use of Marijuana

Missy Franklin, ambassador for MSAA,  swims for Olympic Gold.

Scientists Identify Key Biological Mechanism in Multiple Sclerosis

SecureACure4MS launched its first fundraiser  http://hope202011.onlybusiness.com/OnlineCatalog/SAC4MS-list.aspxCanteens are still available and all proceeds benefit MS .


2013
 
We have a highly anticipated MS Therapy that should have FDA approval at the end of March. This is an oral medication called BG12 made by Biogen (makers of Tysabri) - Be sure you are following us on Facebook and Twitter as we will be providing updates as we receive them.
The FDA has approved Rebif Rebidose and it should be available for purchase in 2013
-Rebif RebiDose was designed with the objective to assist with ease of use and to offer patients an alternative delivery option. In the US, it will be available in a monthly pack in two different doses, 22 micrograms and 44 micrograms, and in a titration pack

Marijuana is still heavy in the news.  I have a feeling we will see more legalization of medical marijuana in 2013

Revalesio's RNS60 Protects Myelin and Halts Multiple Sclerosis in Mice

Wikipedia lists the following as Phase 3 therapies in clinical trial... this is exciting to see so much research in its last phases

  • Alemtuzumab (injectable. brand names: Campath and Lemtrada; under development by Genzyme and Bayer Schering)

    • Daclizumab (injectable. Brand name Zenapax; under development by Biogen and PDL)
    It excites me to see all of the new therapies on the horizon. I look forward to all the discoveries that are found in 2013.

    Just remember...Never give in to your MS... ADAPT!!!  Most things can still be done, dont limit yourself.  ADAPT... most things can still be done, we just do them a little differently.  ADAPT

    Wishing you all a Happy and Healthy 2013.  Thank you all for being part of the SecureACure4MS family.