Sunday, March 17, 2013

It's the 2nd half of MS Awareness Month



MS Awareness Week comes to a close but MS Awareness Month is still in full force. We are in the 2nd half of this amazing month.

MS Awareness lives and breathes for each of us 365 days a year.  We are honored to have a month of special focus
 
we want a cure
we DESERVE a cure
Let's Find that Cure TODAY

Unfortunately research takes money, which is why you saw many fundraisers throughout the MS Community.  SecureACure4MS is doing their part and teamed up with some great companies to offer great product, with the proceeds going to MS.  Missed out?  dont worry, these fundraisers are going through March 31st


We have MS Awareness Bracelets by Beads by Katrina


We have Living Lockets by Heather Young Origami Owl Living Lockets Independent Designer



We have Scentsy by Kelly Russi



We have our fabulous water canteens and Exclusive Glass Bottles by Hope-2o


 


During MS Awareness Week we were HONORED and Privelaged to bring you 2 incredible guests.  We were first blessed to have Cindy Richman who is MSAA’s Senior Director of Patient and Healthcare Relations.  She shared with us what the MSAA (Multiple Sclerosis Association of America) and what programs they offer.  They are an organization for YOU.  They only want to help you.  They have programs that offer:

Cooling Equipment
Barrier Free Housing
MRI Assistance
Toll FREE Helpline - (800) 532-7667, extension 154 Monday through Friday, 8:30 am to 5:00 pmET

They have a ton of resources at your finger tips,  They have a awesome Lending Librabry that offers

The MSAA Lending Library Program offers books on the following topics:

  • Multiple Sclerosis – Medical
  • Multiple Sclerosis – Daily Living/Care Giving
  • Personal Accounts
  • Health and Wellness
  • Associated Ailments
  • Foreign Language-MS
  • Disability Issues
  • Accessibility
  • DVD/Video/Audio
Visting the lending Library to find out details of this program at http://mymsaa.org/msaa-help/lending-library/

They started SWIM for MS - Swim for MS in any pool at any time - for more details go to http://swimforms.org

Olympic Champion Missy Franklin is our MS Ambassador for Swim MS

Why Swim?  Many MS patients are under the mercy of using assisted devices to ambulate. When in the water, many say its a freeing time, as the assistive devices are not needed.  They no longer have balance issues as they do on solid ground.

For many others who have Heat Sensitivity issues, Overheating makes it difficult to exercise.  When in the water, the water acts as a cooling agent and allows the MS patient to do more without overheating and causing an issue.

If you missed our interview with Cindy Richman, you can listen to it on the MSAA webpage at http://blog.mymsaa.org/

SecureACure4MS is a proud supporter of the MSAA



On March 14th we were honored to speak to Dr Robert Fox.  Dr Fox is the Staff Neurologist and Medical Director at the Mellen Center for Multiple Sclerosis at Cleveland Clinic. He is also the Medical Director for NARCOMS

 
NARCOMS is the North American Research Committee on MS.  They are a Global Patient Registry for patients with MS.  This registy is completely confidential and the information you provide will be used along with the other Registrants for research purposes.  Some of the benefits of joining the registry are:

Benefits of Participation

  • You help provide information needed to learn about Multiple Sclerosis and the progression of disease.
  • You are asked to complete two update surveys each year.
  • You are notified of clinical trials and other studies in which you may be eligible to participate.
There are over 2.1 million MS patients in the world and currenty around 36k registered with NARCOMS - we need to spread the word and get more people registered.  Dr Fox and his collaborating research partners are working hard to find new Disease Modifying Drugs for us, working on a CURE and also doing a lot of research to help those with progressive forms of this disease.

There vision is : 

 

    • The Vision of the NARCOMS Global Patient Registry is to improve clinical care and quality of life for persons with multiple sclerosis and their families through increased knowledge about MS.
    • We strive to develop collaboration between centers of excellence in MS throughout the world to increase knowledge, leading to improved clinical care and quality of life for MS patients.

    if you are not yet a memeber of NARCOMS... go to http://narcoms.org and click on "become a participant"

    If you missed this interview with Dr Fox, it is featured on the NARCOMS website. ( Left side)


    we have great shows lined up for you to close out the month  -


    March 18 - Adam Pinkney, founder of YAMS - Young Americans with MS. 
    March 21 - SecureACure4MS is on the Positive Experience Show
    March 24 - Robert McBurney of Accelerated Cure Project
    March 26 - Author Richard Cheu
    March 28 - MS Advocate Amy Schack




     
    All events came be found on the EVENTS tab at www.secureacure4ms.org (left side of page)
     
     
    We hope you will join us for these exciting events and call in to speak to our guests who would love to answer your questions.  You can also join us is the chatroom during any show and ask your questions there.  Sharon and Heather will then ask them on your behalf.  To chat with us, you will need  a blogtalk account.  Sign up free at Blogtalkradio.com - be sure you are signed in during our shows and interact with Sharon, myself and the other listeners.
     
     
     
     
     
     
     
    * some information contained in blog came from MSAA and NARCOMS websites
     
    

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